It is with great joy and happiness that we inform you that Aaron Tanner is receiving his heart and kidney transplant! Please pray for a successful transplant, pray for the surgeons and staff, Aaron’s family, and the donor family.
Thank you for your prayer and best wishes for Aaron and his family!
Dear Friends,
As you know Aaron Tanner is fighting the battle of his life. We are asking for an increase in prayers so that Aaron can receive the miracle of a heart and kidney transplant. Below are two links. The first link is a link to our blog page. There you can find updated information about Aaron and our family.
The second link is a link to our prayer page on Facebook. If you have a Facebook account, we would to have you part of our prayer page!
As always, we are extemely grateful for your prayers, good wishes and generosity.
Please feel free to share this link will all of your friends and family to increase prayers for Aaron.
I have not posted an update in awhile; things have been absolutely crazy since we have been back home.
We are gone three days a week for dialysis. I did not anticipate how much time it takes to get back and forth to the city. They have increased Aarons dialysis runs to 4 hours each treatment, and it takes about a half hour or so to set him up on machine. Therefore, we are in treatment and he is doing fantastic being home. I have not seen him happier.
Just a little background info for those who are just finding Aarons story….
We are still waiting for the phone call, he is still listed 1A. I can’t tell you how many people – even nurses will ask me if we have the organs or when the transplant will take place. I have answered that question so many times.
So no, we don’t know when it will be. It will be a 5-hour warning or so because he needs a heart. In order to receive a heart, it has to come from someone — a child close to Aaron’s size, with the same blood type and match that would be on life support. He also has to receive the kidney from same donor, so he does not reject it after the transplant.
We are just waiting and waiting. Because of his age, it could be a long wait or it could happen at any moment. We have waited 6-months so far. Children in his age group tend to wait the longest. That is why we are trying to raise donor awareness, children like Aaron die each day around the world waiting on a list.
He is on an IV medication that he has to have running continuously. The medication gives his heart a little extra squeeze because he has a very very faint light squeeze in his heart, while the rest of us have these vigorous hardworking pumping hearts beating in our chests that is what has happened that is why he is in kidney failure his heart could not pump or work to keep his kidneys functioning.
Now since kidney failure Aaron does not urinate at all (we get that question a lot too) that is why he goes to dialysis to filter his blood of all the toxins. Our little tiny guy is in a battle inside that little body of his night and day every breath is hard and each pumping of his heart is very faint. He is a miracle to us and we will do whatever we can to get to his transplant we have to ask for your prayers.
Remember the movie Horton Hears a Who? I think of it often God will here all of our voices praying and Aaron’s miracle will come (WE ARE HERE, WE ARE HERE) I scream it in my head constantly because our faith will keep him strong. I can’t give up, but I am asking all of you to not give up. I am so extremely thankful to each and everyone of you for your constant prayers. In Gods time.
I am home, Aaron is home now, and we could not be happier! My boys needed to be together it was so difficult and hard on them so keep them in your prayers too. Everyone says children are resilient and so on and they bounce right back but put your children in our situation. They are all just children. They should be having fun and laughing and playing and learning, but its like they are growing up in the middle of a war.
Thank you all for not giving up, we try the best we can each day and like you, I want the best and brightest for my child. I wake up each day and thank our God for every Moment.
Welcome Home Aaron and Elizabeth
Aaron arrived back home safely on Saturday. The little guy requires ’round the clock nursing and regular dialysis treatment due to his failing kidneys. Aaron must travel to San Francisco every other day, for three hours of kidney dialysis.
Elizabeth has posted a brief comment (see the side panel under “Recent Comments”) to the site. As is understandable, Elizabeth is feeling a bit overwhelmed at this time, but she promises to send an update just as soon as she is able to see daylight.
Reporter Laura Anthony, wrote an update on March 17, 2010 for ABC News 7. Read it here…
Toddler still waiting for dual transplants
More updates will be posted as they become available and you can be sure Elizabeth will let us know just as soon as she has news of the transplant surgery. Your continued prayers are greatly appreciated!
Prayer warriors, we have been here two weeks. Things are on such a fast pace.
Early this afternoon (October 13, 2009) Aaron underwent his second MRI. He had one shortly before we left UCSF, but those images are not clear enough for the transplant surgeon, Dr. Lax, to map out the transplant. Aaron, also with being a hyperplasic left heart baby, has left atrial isomerism and heterotaxy and he is a single ventricle kid. His insides are all different than most congenital heart children.
For 4-years he has been walking around and he was very sick inside his medications and surgeries were helping him. We being here with Dr. Lax are the best thing that has happened to Aaron, he is one of only maybe a few that could do this transplant. He has done them before and he has done them before with success. Once Aaron has this transplant he will be more or less cured of his major heart problem and should be able to live a normal life.
Aaron will be listed in just a few days and he will be listed with status A1 that is the very top. When the doctor is off and not available to do surgery they are talking about putting Aaron on as status 7 that means he accrues time, but he will not be called if organ becomes available only because Dr. Lax is the only one of the transplant doctors that can do this. Luckily enough Dr. Lax is pretty much here 24 /7.
I think he is taking a couple days off next week, so Aaron will be status 7 for a couple days but that means they have faith that it could happen any moment once listed. All that is happening is very good they are taking such care with everything that is happening. God has put us here for a reason and put us into the hands of a very capable cardiac team. We will have Dr. Lax as his surgeon and Dr. Alejos and Dr. Greg Perens as his cardiologist team.
We will be discharged from the hospital maybe early next week can you believe it. We have been in the hospital since June, he will remain on his milrinome IV medication, and be assigned a home health care nurse that will check on us .
We will be nearby the hospital, their only fear is that he could go into tachycardia, but so far he has been stable the entire time. We are still in the process of trying to find housing we have a couple temporary situations. Nothing long term or permanent yet.
The doctors feel he would have a much better quality of life right know outside the hospital being here is so hard on him. He is only 4 so I have such a hard time rationalizing it all with him. He is also at his witts end with it all. He was in the ICU almost all of that time so he has had his vitals done every two hours and had bandages changed over and over again and now his dialysis.
The only way I think I have managed this far is with the love from all back at home and with the Love of God, when I think I cant do it anymore and I just want to take him away from all this I always pray and somehow God has been there each and every time. He shows himself in the love from so many at home and in the love and support from our family.
Aaron is scheduled to have his MRI this early afternoon and I spent most of the morning signing consents as well as listening to the doctors explain his odds and possible outcomes and hearing that regardless he had to do this. There is a small chance that since he is in kidney failure he could have a bad reaction to the dye that is used in this MRI and develop an auto immune disease.
So, being here alone I was very scarred and nervous. Before coffee or anything this morning I was given a letter from father Dismas, telling me to stay strong it was probably sent a week ago but did not arrive till this morning.
Then Aaron and I went to the playroom when we returned there was a card from father Dismas, sent on an entirely different date that arrived also fatefully today letting us know that our family at Holy Rosary is praying for a safe and sound return home.
That was not just chance — that was OUR GOD answering my prayers. These kind situations have happened on so many occasions throughout this whole ordeal. I was so sadden about being alone today and I was being told that I was not alone.
Rejoice in all you have not the things because they are just that things, rejoice in having God be with you when you need it most and even when you don’t realize it. I am suffering immensely but Our Lord over and over again will not let me suffer alone he is here with Aaron and I time and time again.
God Bless you all prayer Warriors and thank you for your continued support. We are just beginning to climb this mountain. We don’t know how long it will take but we can do it.
"Hi Friends!"
Thank you for all your support!
