Aaron had the hemodialysis catheter put in on Friday; we had problems with it earlier today (Sunday). The problem is that Aaron is so small and, with his heart problem, the shift in blood flow is so large. Hemodialysis works great on adults.
They do it on children, but with Aaron, he has the complication of his heart condition, so it may take a few days to know how well it is working. I am confident it will work; his body is tolerating it so far.
We have found so much strength from all of the emotional support we are receiving; there is not a moment that goes by that we are not thankful for that. We have received such beautiful notes of encouragement and are told we are in the thoughts of many.
We are still anticipating going to UCLA. The infection may take up to 4-weeks to run its course; the infection was generalized within his peritoneal catheter. They have removed it and are treating it. Doctors believe they have the infection under control.
The reason they had to hold off on the move to UCLA is because he cannot have any type of transplant with the infection that he had. It is a very strong infection to combat internally, so they are taking it very seriously.
We should have a good idea how things are going sometime next week after the holiday. UCLA may be able to tell us more then; they have requested two additional tests. They definitely want the heart cath done, it will have to be done here, and they would like a MRI or maybe a CT of his main artery for transplant. I am hoping it can be started this week.
We will continue to pray for our miracle; we have such a long road ahead and with God anything is possible.
Thank you and God bless,
Elizabeth
