Aaron has been doing well his doctors are very proud of his progress. He is enjoying first grade and having fun being in school the whole day like the big kids. He has trouble with keeping up with everyone and is playing catch up, but he is working very hard, last year he missed more days than attended school.
So far, this year has been better, the cold season usually brings more flues and illnesses but so far so good. He started a hip hop class at the beginning of this school year and he loved it. We were excited because it would really help with his coordination but his stamina is not up to it yet, so we will try again next year.
He still loves to dress up like a super hero as a matter of fact he had a Superhero themed birthday party with a special guest his idol, The Red Ranger made a special appearance. He really enjoyed his first real birthday party. He was also awarded a plaque from the mayor of Brentwood declaring him a “special guy” on the day of his birthday.
He still is on numerous medications but he does very well with them. He understands a bit more about what happened and he asks many questions. I’m so grateful to his donor and their family. On many days I am awestruck of the gift that was given to Aaron and us. It’s a gift to see or son do these things, it’s the most precious and amazing feeling.
We are trying to play catch up with everything. We are still struggling to pay for his medincations and I juggle the cost around as much as I can. So many are struggling financially, so we understand how the help dropped off. I am collecting toys and gifts to take to the hospital.
As many of you know Aaron has spent a great deal of time at UCSF Benioff Children’s Hospital. I would like to start a new tradition, helping out the families and children there that are spending the holidays away from home worried about there loved ones and their future.
There are many critically ill children at UCSF. There is an entire pediatric Cardiac Intensive Care Unit along with the regular Intensive Care Unit and a Pediatric Oncology floor where these children spend months at a time there, not only the child but typically with a parent.
We are collecting gifts to take to the hospital. These are families that are in need, they spend numerous hours in the hospital and back and fourth from the hospital most travel from great distances. The holidays are extremely difficult on the families and their siblings, any unwrapped children’s gifts would be greatly appreciated. Also, any gift cards I can used to purchase gifts or iTunes cards. Message me if you would like to donate.