Aaron is back safe in his bed in 7 North at UCSF. He had to go to the ICU afterwards for recovery. What would have been such a simple test for most — was so complicated. Your prayers and well wishes are helping him be stronger. Tomorrow he has his surgery for placement of the dialysis.
Posted: Wednesday, August 12th, 2009
Tags: Aaron, catheter, catheterization, dialysis, ICU, prayer, recovery, UCSF
Saw the item on ABC News.com and took courage from your story. We are parents to Rudy (HLHS) who spent the first 7 mos at UCLA in the CTICU. We’re expecting to go back for the Glenn in October. Based on the amount of time we spent there, we think very highly of the team there and how to survive extended stays there.
Please call on us if we can be of any assistance.
Rolf and Trish
Santa Barbara, CA
http://www.rudysbeat.wordpress.com
Aaron and family,
You’re story so touched my heart. I myself need a heart transplant. I had a massive heart attack after giving birth to my 3rd child 17 months ago. After the heart attack my heart began to fail. So I got a defibrillator. A couple weeks later we found out our new baby had craniosynostosis and last september dr’s removed his skull and reconstructed it. 2 months ago after a cath I found out my arteries are closed back off and there is no viable muscle left, so now I wait for what dr’s call the inevitable, my heart to fail completely and a heart transplant. I just turned 27, and my children all under 6. My situation is no where near yours, but I have found encouragement in God. Aaron, you have defied the laws of man by fighting to live, and you are a fighter, your story is touching lives this very moment, and mom I know when all you want is to give your children everything and it’s out of your control, it is so hard, but God does work miracles, I know I am one, and so is your son. Thank God for your strength and commitment to your family. God Bless You All.
Hello Aaron and Family:
Thank you for sharing your family story with us all. We were very touched by the story and we most certainly can relate to you and your family about having a loved one being diagnosed with a heart disease. In our case, it is the hypertrophic cardiomyopathy heart disease and although the outcome thus far has been positive, it was not without complications. However with the grace of God, family, friends, and many prayers, as our family is praying for you, it really helped getting through this a little bit easier. I know it is hard for you, but continue to keep faith and know that many people are praying for you and the family. God Bless You Tanner Family.
Stephanie,
I wanted to thank you, Hypotropic cardiomyopathy is what our 27-month-old, Ethan passed away from suddenly. My heart goes out to you and your family. My prayers go out to you and your family also. Having a CHD is a very difficult thing for any family.